Father trekking from one state to another on barefoot to help get $3m to fund research for daughter's genetic disorder treatment

Father trekking from one state to another on barefoot to help get $3m to fund research for daughter's genetic disorder treatment



A father is going the extra mile by trekking from Maine to South Carolina to support his 9-year-old daughter Hasti, who has a rare genetic disorder called Cornelia de Lange Syndrome (CdLS).



Chris Brannigan, a 41-year-old retired British Army Major, is currently walking barefoot from Maine to North Carolina in an effort to raise money to create a gene therapy for CdLS.



"We knew as soon as Hasti was born that she had some challenges and things weren't quite right. She had a seizure within 24 hours of being born. She wouldn't eat willingly for the first year of her life. It took her five years before she even said a word," he tells PEOPLE (The TV Show!).



After finally getting a diagnosis six years later, Chris and his wife Hengameh were told that there were no treatment options — an answer they "never accepted."



"It's really, really terrifying because for us, we have such a bright and bubbly little girl in Hasti, and she loves life. But from about age 12, all the studies show that children with CdLS have declining executive function, they have an increase in aggressive behaviors, in ADHD, in autistic spectrum disorder type behaviors, and in some cases they become mute," he explains.



"We just don't want that for Hasti."



Last January, Chris and his wife founded Hope for Hasti "with the aim of creating a therapy that can treat CdLS."


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